Imagine being ill with a very horrible disease, one which either no one has even heard of or else they have very wrong ideas concerning it. The latter is most often the case. This disease needs to be rightly understood by those in medical practice and by the family and friends of people with ME/CFS. This brief video is to shine light on the many wrong beliefs surrounding ME/CFS and to respond with the truth from the experts, the researchers and clinicians who have studied this disease. ***Note: You can change the playback settings for easier reading of the slides by clicking on the three dots in the upper right-hand corner and changing the playback speed. Unfortunately, the program I used on my phone to make this video did not allow for more time on each slide. Sorry for the inconvenience, but I appreciate your taking the time to watch it!
Please also check out the below video for a glimpse of the challenges ME/CFS poses for one family with three members diagnosed with ME/CFS and for how they are helping to promote research to find answers:
One Family’s Story of ME/CFS
Resources for additional information on ME/CFS:
Open Medicine Foundation -
Solve ME/CFS Initiative -
Simmaron Research -
Advances in ME/CFS Research and Clinical Care -
Centers for Disease Control and Prevention -
Quote and image sources from this video:
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